Monday, February 20, 2006

DAMN!

Last chemo today or so I thought. I have been a mixture of trepidation and joy all weekend. Trepidation because this would bring the surgery closer finally and joy because - well, do I really have to spell it out? Joy because my chemo would finally be over, thrown in the bin with nausea, depression and hair loss.

But a patient's relationship with chemo is like a dance, an energetic tango, an endless powerplay as chemo tries to constantly outdance your feet. First it strips your hair, your stomach and now, it has attacked my white blood cells. As most of us know, the white blood cells are the cells that attack infections. They, like the hair follicle cells, the digestive cells, and the mouth cells, and, of course, the cancer cells are rapidly dividing so they are attacked by the chemo. The doctors here refuse to give chemo when the neutrophil level, a component of white blood cells, is under 1.5. The normal level, just so you know, is level 5.

I have been aware for a while now that I have been skimming the surface of that level like a pelican skimming for food, but today, today I have sunk under it therefore putting myself at risk for neutropenia, an extremely serious complicaton which can, if ignored, end in death.

One can do absolutely nothing to bring this level back, only rest and really I am incredibly lucky that this is the first time that I have had this. A friend who began this chemo journey with me, is only on her fifth chemo as her neutrophil levels have been as low as 0.4 meaning that she has been hospitalised numerous times with infections.

It is reprogrammed for Friday instead, and although I keep telling myself how lucky I am that I have only been delayed for 5 days out of the whole 8 cycles, I am still disappointed...

Perfectionism anyone? *wry smile*

I was hoping the fat lady had sung...

Minerva

17 comments:

Amber said...

Wow, you've done well on your journey. This too will soon pass. Hang in there.

A

amanda said...

HHmmmm...Eric's doctors kept him going through neutropenia and just had us shut into our apartment, armed with surgical masks, hand sanitizer, and bleach. I'm glad that your docs gave you the option of postponing your schedule a bit. We are still total germophobes from going through that. I hope that your cells rebound nicely and that your able to finish treatment on Friday...only 4 more days babe...hang in there!

Jemima said...

Can I lend you some? Would that help?

love Jemima x

Leela Lamore said...

I have been there but not through chemo, but thanks to anti biotics ... so too I understand. Hang in there you have done exceedingly well and 5 days is just a smidgen of time.

rob said...

When...do you get...a BREAK, girl?!?

"What doesn't destroy us makes us stronger", huh? If that's the case, I got about two tons of concrete in my back yard that needs to be moved. Could you fly out here and take care of that for me? It should only take one trip for you.

I'll give you beer.

Jo said...

That fat lady eh? What a total bitch!

So sorry for you hon - rob said it really well...

You've got this thing on the run...these are its last throws of the dice. Stay resilient - we're all behind you.

Hugs

Von Krankipantzen said...

Oh man! I feel for ya! Totally frustrating. They added 3 chemos for me so just when I thought it was over... I also had really low white blood cell counts and had chemos postponed for a few days. After that happened twice they gave me a drug called Neupogen which is injected just under the skin and boosts white blood cell counts. I went from .7 to 23 on that drug. Do you have access to that? I think it is also called GSF but am not positive.

Hang in there. Almost over!!! And the last chemo is always the easiest.

JustRun said...

That fat lady is one picky little high-maintenance gal, isn't she?!

When a close friend of mine was going through something similar in her treatment we played the song "Tighter, Tighter" over and over again- espeically for the lyrics "hold on, just a little bit tighter now, baby." It also helped that the group that sings the song is called 'Alive and Kicking'.

Hold on.

Thinking of you.

kenju said...

I can imagine that you are disappointed, but rest and eat well and perhaps your count will be back to a proper level soon. I hope so.

Julie said...

You're almost there sweetheart! I got the 4 day stay in the hospital due to neutropenia and a fever of 105...not exactly what I had in mind when I was wishing for a weekend away with someone to wait on me hand and foot..after that they started giving me the neulasta shot..majorly expensive...but totally kept my pain in the arse butt out of the resort wing ;) I know having your sight on a date and knowing it's the end of this phase is grounding..and having that yanked out of your grasp shakes your hold...You're almost there!!!

Raehan said...

So sorry. You spent energy gearing up for you and then have to do it all again.

The fat lady does always sing, thoug, even if she's late.

Terri said...

Wait a sec.....is that the fat lady singing that I hear in the background?
My prayers and thoughts are with you, Minerva. Keep on keeping on.

mar said...

Hang in there. They stopped the chemo on my good friend's 46-yr-old brother... I'm not sure it is appropiate to tell you this, but I am very sad for her, and needed to read how you are doing. Hugs.

ME, myself, & I said...

She's just warming up so she can sing loud and clear...

chronicler said...

Good thoughts and prayers coming your way!

David said...

I prayed for you this morning.

Adrift at Sea said...

Breast cancer has fairly good treatment options nowadays. I'm keeping you in my prayers and keeping the fingers crossed just in case.