Sunday, January 20, 2008

Questions.

Questions.

So how does that happen? How do I get diagnosed with secondary cancer in my thymus and right axilla in September and then cancer free in January? Let's review the evidence;

September: CT scan which reveals that thymus gland is enlarged. Could be as a result of chemo but Prof wants to check with a PET scan.

Late September: PET scan which reveals cancer around the thymus and under the right axilla.

October: Needles put into right armpit to try and take out some cancer cells for analysis. No cancer cells found.

December: PET scan reveals that cancer has spread from thymus and right armpit into the neck as well. Doctor reluctant to start treatment based on PET scan as still so new and high rate of false positives so he orders a CT scan for early January. (Thank goodness - I could be having chemo right now otherwise!)

January: CT scan comes back completely, utterly clear. The thymus enlargement in August was clearly just a result of chemo and the PET scans were false positives.

Next check up due in two months. We are going to forget scans and go by feel. After all, knowing it is back doesn't help at all until we have (excuse the pun) something solid to deal with.

So this means that after all that pain and heartbreak, it never actually was secondary. It never metastasized after all. I have been clear all this time and I am currently.

Of course there are the requisite questions going round my head, I mean, after all that means that the CT scan could be a false negative which it could. But second guessing, anger, and distress are, I feel, a waste of time. Yes, I have been through unnecessary grief, yes, I have been to the end of the earth and back, but you know what? I CAN do it. I can look death in the eyes and prepare for it; I can deal with secondary cancer and continue to live my life. I do not blame my doctors at all: it is better to have doctors who look after and out for you than neglectful ones.

I am so damn lucky: I still cannot come to terms with it. I woke up this morning and the first thought was the same as I have had for the past two years: Oh, I have cancer, and then came in the flow of joy, No I don't!

When I was under the illusion that I was under Cancer's shadow, I kept writing about snatching every moment, but I didn't really feel it. Today, I feel it. Today, every shade of green in the garden, every grey in the sky, every smile on my daughters, every monotonous household task has a joy all of its very own.

I am back to being ordinary and I love it.

Minerva

44 comments:

Karena said...

It gave you a lot of unnecessary grief, Minerva, but right now, it doesn't matter. What does is being CANCER FREE!!

Bobbie said...

What do "we" do now? I was told that the breast MRI has a high rate of flase positives so many doctors are reluctant to order it. Yet for me, it showed cancer that wouldn't have shown up for 3-4 years. I am so happy for you. So now ENJOY

Terry said...

I am glad for you Minerva..
I am wondering if all that you have been through makes you so much more aware of the ordinary homey things of life and people, than I do.
I think you have so much more appreciation of them and because of you I am trying my hardest to realize how special each moment really is!'
I had the nicest Christmas because of you!
I really do love and appreciate you!!....I am so glad of the day that I found your name on Donna's blog and I will be ever grateful to her for caring so much for you!!!...Love Terry

kenju said...

And I love it for you, Minerva!

David said...

i do so wish that I could be that sort of "ordinary"

umm, maybe not, I will just keep my humdrum, daily crunch of hammering and sawing, and climbing trees.
Do you ever climb trees, Min?

Rantz said...

I'm very pleased for you Miss Minerva.

Now you're going to have to get used to dealing with the Big A.

And I mean AGE - not AIDS - you silly queen.

:D^23

Minerva said...

Karena - absolutely! Of course there are shadows around in that it could be a falst negative and cancer could be lurking..but then one of us could be run over..

Time to be joyeus!

bobbie - Absolutely - it does raise those kinds of questions and the thing is, there is no advantage in knowing earlier with cancer really as there is nothing to analyse.

Terry - You are such a dear. Time and time again you return here, just holding my hand. I am so grateful and so pleased you found me too.

Kenju - How very kind!

David - you are extraordinary in just the right ways :-)

Rantz - right back at ya!

Minerva

fineartist said...

OH MY GOD/GODDESS, blessed be!

Right on, right on, right on, happy dance, with a hole in my stocking, rings on my fingers and bells on my toes!

Oh Min best news I've hear all year!

Hugs you, hugs me, big old slobber kisses,
Lori

Anonymous said...

I am smiling ear to ear right now, Minerva, just thinking about how joyful you must be feeling!

Chris [a blog fan of yours who cares very much]

retardedrugrat said...

Minerva - I'm here after reading the post over on CQ's blog.

Although I'm a complete stranger, I've been following your story and your news and this particular post made my eyes fill with tears of joy.

I'm so so happy that you're in the clear right now, and I'm keeping my fingers crossed that you stay that way. Your strength and wisdom in the face of adversity amazes me. I don't know if I could be the same if I were in the same situation.

You are quite some lady!

Jules said...

Minerva, I'm so happy to see your report of being NED! *dancing* I come and check on you every day but haven't replied for a long time..and you might not remember me, but know you are so very present in my thoughts and prayers.

Anonymous said...

I am so happy for you, Minerva. And yes, it was a false positive and caused you such pain and dispair, but you were getting through it. You are a STRONG and AMAZING woman. I am so thrilled that you are filled with the joys of the small everyday things. You deserve this little piece of sunshine after all you've been through! God Bless You!

Frankie Dolan said...

Thanks for taking the time to explain the medical events that you experienced over the past few months - I'm sure that will be helpful to others for many years to come as they land on your blog searching for more information about cancer and what may be happening to them. And we are all loving your news right now!

Dianne said...

I've only been visiting for a short time and I haven't gone back through many old posts yet BUT I feel quite comfortable in saying.

You are far from ordinary!

Rainypete said...

I finally get a chance to stop in and have been hoping and praying for good news and dammit here it is! I'm so happy for you! Time to put it all away and get on with getting on.

Jenny said...

I'm glad for your good news. :)

In lymphoma (which is what I have/had), there are often false positives for something called "thymic rebound." I wonder if that is what you experienced and caused the false positive. Basically what happens in the thymus (which usually stops working during childhood) starts back up again and thus shows up on the scans.

Doris said...

Thanks Minerva for saying all that! You have a great philosophy on life and I am wishing you many, many happy years ahead smelling the roses and writing the prose :-)

robin andrea said...

This is absolutely the best news I've ever read on these internets. Congratuations on your new found joy and health. I am thrilled for you and your family.

craziequeen said...

Does every thing have a reason? I wonder was there a 'reason' you went through all this heartbreak, even the extended false positive?

Let's see: [ticks off fingers]

1. You created a circle of friends through your wonderful writing.
2. Your family and friends were tested beyond normal endurance and came sailing through.
3. You now know you can do anything.
4. You introduced us all to cancer in such a way that I, for one, am more able to cope with my own father's dark shadow.
5. You inspired so many people to go that one step more, including myself.
6. You showed yourself to be strong and sensible.
7. You now have time to write your book, publish your blog, raise your family, teach your boys, have deep and meaningful relationships.

I'm running out of fingers here...but I think you get the idea, sweetheart :-)

cq

alan said...

You are anything but ordinary, my friend! Anything but ordinary!

I read not long ago of someone having had lymph nodes that checked positive removed, only to find out that the ink from their tatoos had caused the false positives that started them down the road to surgery. It seems it's very commonplace but also missed very often!

I'm so very happy for this new page added to the book you were speaking of a few weeks ago!

alan

Anonymous said...

You my brave,incredible Minerva have never been, nor will you ever be "ordinary"!.....Big hugs,Karen

David said...

bring on "the book"!

Beth said...

that is such good news. you're right having caring doctors is a good thing.

Michael Manning said...

Dear Minerva: I am CELEBRATING!!!! I agree with you. Forget the grief because that is behind you, truly. I hope you will now keep us updated as you look Forward and Plan and Love and ENJOY!!! Just wonderful news :D))!

paula said...

Hi Minerva,

I was reading an earlier post in which you debate whether to have your blog published, or forego that because you wonder if a lot of other bloggers feel the same about their blogs.

Minerva,

Your story may or may not be much different than many a woman's, but it is your talent as a writer- your magic in fashioning words- that is your star. Do it, gal!

Paula

David said...

NED
has a nice ring to it.

monicac2 said...

How WONDERFUL! I can completely see why you would be motivated, now, to seize every moment. What an incredible blessing!

Josephine said...

You were always ordinary to me, if you know what I mean? Ordinary in a dignified, caring, honest, compassionate, on the level, straightforward sort of way. An ordinary person who got an outrageous, unfair disease, which never took away your ordinariness - the thing that made me connect with you and relate to you.

Even though I am transsexual woman going through transition. We seemed to share something...

Welcome back to where I always had you anyway darling...

H said...

Minerva,

I have been reading for several months by way of Deanna at AccidentalAnecdote dot com and have been very moved by all you've written. Your writing is excellent. I've held my breath with you every step of the way. I am so happy for you, for someone I only know through reading of your life, so much I am tearful for/with you as I read. As someone who has been touched by cancer (not personally, thank God, but close enough), I truly have felt for you. Congrats on your wonderful news. Now go out and LIVE.

Sincerely,
H in FL, USA

erpeer said...

Minerva,
I am overjoyed for you and your family! That is the most wonderful news. You must be elated. (((HUGS)))
Erica

Lyn said...

Ordinarilly reading what you write and thinking of all you have endured gives pause to anything that could be called an ordinary life but saying you are back to being ordinary speaks of how extroardinary an ordinary life can be. Like Dorothy in The Wizard of OZ, you followed the yellow brick road and found your way to Kansas again.

SimplyAware said...

WELL DONE!
Well Said!
Blessings on the Adventure of the Rest of Your Life!

Anonymous said...

I broke down in tears when I read your update. I've been reading your blog for a very long time and you've been my inspiration. I've silently rallied for you and send thoughts and prayers. This is a wonderful day and I am bursting with happiness for you! ~Anonymous in California

Snaggle Tooth said...

It wasn't there! Believe it and live it! Praise God.

Remember me?
I've prayed for you every day since I was pointed here by David about a year ago.

My Friend AT who has a 13 yr old duaghter in also now clear, a year later!

It is NO ACCIDENT- the power of prayer. God's power can do anything! We were all heard! (and answered)

Patti said...

Hi Minerva, i'm here via Michael Manning. Congratulations on your extraordinarily good news.
My Mom is a two time breast cancer survivor so I know your joy!

David said...

i must confess I love snaggle tooth and the confidence she exudes.

Terry said...

Dear Minerva....Just swinging by to say hi to you and God's blessings...Love Terry

moon said...

WHOOOO HOOOOOO WHAT AWESOME NEWS!!!! I'm so happy for you...I'm so happy for your family, I.m so happy for all of us who have been sending positive thoughts your way...its just such terrific news...and it can be such a gift of hope for all of us ...your doctor did right to perservere and make sure...and although the grief and pain and heartbreak you went though was horrible this makes it all worth it, to appreciate life that much more...OH I'm so happy for you...I have a huge smile on my face...grinning with glee lol.

fineartist said...

Minerva, a similar thing happened to one of my best close proximity friends about four months ago. She went in to her dentist to get a partial plate, only her dentist wasn't there that day so she saw one of his colleagues, and he told her that she had throat cancer in varying stages, with four lesions, and that he wouldn't be able to fit her for her partial until she had it looked after.

So she waits a couple of months to go to a throat specialist, trying to put it off to the back of her brain, and the throat specialist says, "I don't know what the heck so and so was talking about, those are canker sours, not cancer."

Yes, she was elated too. It's like having your life handed back to you, or that's what she said anyway. xxxxoooo

byhisgracealone said...

I am praising our Lord and Savior, Jesus Christ for the miracle He has worked in your life....for the prayers He heard and answered on your behalf from every corner of the world...yes I am thanking a mighty and powerful God...may you and your children grow stronger each day in His love... Amen

blessings
donna

Lady Luck said...

Congratulations on becoming a NERD (no evidence of recurring disease).

I'm thrilled for you!

figleaf said...

Sorry to be so late to this party, Minerva. I think about you a lot and I'm so glad... whatever it looked like it was... wasn't.

Don't ever let anything stop you from snatching every moment though! My children are playing peacefully in the next room and that's suddenly too far.

I hope the lateness of my happy New Year wish only makes it all the stronger for you and yours.

figleaf

Lyn said...

There's a rainbow round your shoulder and a sky of blue above.
Just think of how a box of ordinary crayons have colored the pictures bright and everlastingly beautiful

Jenny said...

Minerva--
Wow! I haven't been here to check your blog in some time (or mine, for that matter). Just stopped by to see how you are doing, and I am THRILLED! This is the best news I have gotten all year. It moves me to tears to know that you have had your life given back to you like this, that you stood with your toes curled over the edge of a deep hole, and now you are on solid ground once more. Cheers to you! I hope you are finding the joy in every breath and every sunbeam!
Much love to you.